The group aims to:
- provide an opportunity to network for professionals and carers supporting people with Huntington’s Disease
- discuss useful research and outcome measures
- make attempts to influence a local care pathway in Northamptonshire
- update on current developments in Huntington’s disease
- consider different forms of equipment and their benefits
- liaise with the Huntington’s Disease Association in providing training for professionals working with Huntington’s Disease
- support a carers group within the county
For further information please contact Caroline Knight, Consultant Psychologist (Tel:01604 616658) or Jan Roach, Head of Speech and Language Therapy (Tel:01604 616374).
The network has no membership fees so anyone is welcome to attend our events.
Please see below details from our latest event, Monday 29th November 2010
The agenda for the meeting was:
10:00 Welcome and introduction
10:05 Update on Huntington’s Disease Association, Helen James, Huntington’s Disease Association
10:30 Speaker, Dr Sara Minster, European Huntington’s Disease Network Language Co-ordinator
11:15 European Huntington’s Disease Network Standards of Care Occupational Therapy Guidelines
Kirsty Page, Senior Occupational Therapist & Anne Wagstaff, Occupational Therapist, St Andrew’s Healthcare
12:30 Business Meeting
Click here to download the minutes, and click on the presentations above to download slides if available.